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Author: alongim

Anak comelku Autistic Spectrum Disorder

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Post time 12-2-2010 12:03 AM | Show all posts
tumpang tanya
sy ade bbrp org murid yg sy rs mild autisme. darjah 2 tapi masih blm boleh membaca & menulis. even suruh salin pun salah. xleh fokus n cepat marah.parents xmo htr jumpa doc. in fact, mi ...
cmf_comei Post at 23-1-2010 21:32

1/2 ibu bapa memang tak bole terima anak meka ada autisme nih......elok la nasihatkan parents budak tu bwk jumpa doktor and masukkan anak meka ke skolah intergrasi pendidkan khas......nanti lagi teruk ketinggalan pelajaran budak tu
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Post time 22-2-2010 10:36 AM | Show all posts
1369# an2toncit
saya pon duduk kat btho.
my son mild ADHD, dia bukan autistik.
taktau nk kata buat masa sekarang ni. kalau tgk dia, i doubt dia boleh ada basic baca, kira and tulis tu by next year.
saya nak risik2 jugak sekolah khas tu, just in case. apa perlu saya buat? saya cuma ada diagnose from psychiatrist tahun lepas saja.
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Post time 28-2-2010 10:37 PM | Show all posts
1360# cmf_comei

salam,

lama tak masuk thread ni. bz bz sejak masuk KPLI ni. sedih sebab mintak pendidikan khas tak dapat. sekarang tengah praktikal bimbingan dan kaunseling (bdk).

kat sekolah manjakani buat praktikal ni, guru bdk akan tulis surat pada klinik kesihatan atau hospital beritahu murid suspected ada masalah pembelajaran. guru bdk and pk hem yang pegi hospital dengan budak 2.

itu kira last alternatif la kalau mak bapaknye memang degil tak mau dengar cakap. guru-guru ni sume nak yang terbaik untuk anak-anak kita. kesusahan guru mengajar itu biasa, tanggungjawab. yang penting kebajikan anak-anak. kalau budak 2 dalam kelas biasa, dia akan jauh ketinggalan dalam segala segi. bincang baik-baik dengan parents. kalau tak boleh gak, bawa pada pk hem dan guru bdk, minta guru bdk yang panggil parents. guru bdk ada kemahiran yang sepatutnya macamane nak cakap dengan parents.
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Post time 28-2-2010 11:28 PM | Show all posts
salam all,

lupa lak nak update pasal anak.

my kids (twins) both kat pra sekolah. one kat pra sekolah biasa. one kat pra sekolah pendidikan khas. kelas kat sebelah-sebelah je. kat sk danau kota. kelas dia ada 5 orang je. guru pulak 2. satu guru kelas. satu lagi pembantu guru. both of them have the right skills and they have gone the proper training. setakat ni alhamdullilah.

for therapies pulak, my son still go to gleanegles for speech therapy and occupational therapy. speech with firdaus and ot with lokman. last year speech dengan zura tapi since zura dah pindah tempat lain so ot dengan lokman, yang ganti zura.

for this year, memang kesian kat my kids. mommy jauh, sambung belajar buat kpli. bukan mommy je berkorban tapi daddynye, kids pun. kesian sangat. tapi nak buat camne...

nasib baik la my parents sanggup gantikan i, replace me to accompany him, sending him to and fro for his schools, therapies and eip (early intervention program) kat spices. a million thanks to my parents.

his eip still kat spices. dah three years dah since he's three years old. spices every monday and thurs. monday 9.45-11.45am. thursday pulak 2.15-4.15pm.

at the moment, begitu lah. sampai i habis my kpli nampaknye the arrangement with parents pun teratur, and my kids education pun teratur. tengok perkembangan my son camne. for next year, it all depends on perkembangan anak. rasenye he will still be in kelas integrasi but next year in kelas standard 1 lah. sekolah yang sama kot coz they all dah ada sume dokumen and history dia. at the same time, i will continue searching the best therapy for him. dah ada duit lebih skit nanti ingat nak try acupuncture therapy and music therapy lak.
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Post time 10-3-2010 07:56 PM | Show all posts
alhamdulillah thn ni adam,my special little boy teruskan pembelajaran di Smart Reader Kids utk class Smart5.. Adam dah pandai membaca dan mengira....Spelling pon dah boleh dihafal...Teacher slalu bagi sticker ben10 sebab dpt 100%...Tapi adam ni kalau english laju ja tapi BM dia slow skit....kalau kita cakap in malay dia akan tanya what r u talking about... Bengang jer....
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Post time 13-4-2010 08:47 AM | Show all posts
harga ubat dah naik. rm309 for 30tablets concerta.
tapi saya bimbang dgn berat badan anak, makin meningkat, risau tkt obesiti.dia asyik lapar ajer, sampaikan i tak boleh simpan any makanan kat rumah
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Post time 4-6-2010 12:02 PM | Show all posts
concerta wak menda, ek? Dia sama ngan Ritalin ke?
Betul x kalau saya conclude ADHD, the person can grow put of it i.e. makin budak tu membesar, ADHD akan beransur2 hilang tp kalau autism, it;s a different case?
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Post time 6-6-2010 09:14 PM | Show all posts
salam all,

lupa lak nak update pasal anak.

my kids (twins) both kat pra sekolah. one kat pra s ...
manjakani Post at 28-2-2010 23:28

salam sumer... sy org br kat sni selama nih silent reader bc senyap2 nk khatam tread nih. Tq byk2 pd kwn2 yg bagi byk info  berguna di sni especially tip2  mcmmna nk ajar anak2 autism nih. Sy pn ada ank autism jgk boy, dh nk masuk 3thn, masih nonverbal. Takut sgt, hati xtenteram tak tahu nk buat apa terutama bila tgk dia nangis dan ketawa dlm masa yg sama. Manjakani u hantar anak kat spice 2x seminggu dh bape thn? Kat mna eak spices tu, mcm berminat sgt. Masa tu anak you 3thn kan , dh verbal ker? Dengar u sambung kpli, i pn mmg berhajat sgt klau dpt kpli course pendidikan khas tp bkn senang nk dpt beribu org mintak. xfaham la, paginya pegi sek keb, balik tu spices then masa bila ST ngan OT, weekend ker. Tq
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Post time 6-6-2010 09:36 PM | Show all posts
Reply 1357# puakumbu
puakumbu....u therapist yg mna, ST ker OT? kat mna eaa u amk course psl bdk2 autism nih, teringin sgt nk blajar mcm u. thanks byk tips2 yg u dh kongsi dgn ktorg kat sni.
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Post time 2-7-2010 01:17 AM | Show all posts
Reply 1368# chayuk

Salam..

Manjakani baru je habis my kpli around 1half week ago. came back 2 kl on 20th june. so sorry reply a bit late. dah lama giler tak masuk forum.

okay, regarding my son, therapy at gleneagles on tuesday from 2 to 4pm. 2-3pm speech therapy with firdaus. n 3-4pm occupational therapy with lokman. but last week dah tukar orang pulak since lokman dapat keje kerajaan n balik kelantan. now ot baru, her name is wan.

his eip at spices lak every monday and thursday (this year 2010), monday 9.45-11.45am and thursday, 2.15-4.15pm.

his school at sk danau kota pulak, everyday except monday (since dia pi spices pagi). he goes 2 school everyday. for tuesday (gleneagles) and thursday (spices), balik je from school (12pm habis pra sekolah), sampai rumah around 12.30pm trus mandi, makan lunch (if he wants, sometimes dia dah kenyang makan kat sek), than drop his twin 2 iqra' class than off to gleneagles or spices.

macam 2 lah setiap minggu. if dia ada appt with hkl for his neuro ke child phychistris ke normally manjakani akan minta appt petang lepas dia habis kelas pra sek. tapi kalau tak dapat jugak, than i jez inform his teacher that he is unable 2 go 2 class. but spices and gleneagles WAJIB pegi. appt di HKL on other days except these-monday morning, tuesday evening or thursday evening.

oh ya, recently i gave him homeopathy medicines from Dr Osman Nasir kat Ampang Homeopathy Centre. Okay lah, seems 2 b working. now a lot more expression n dah pandai marah... hahahaha. here's d add n phone no.
Prof. Dr. Osman Nasir
Ampang Homeopathy Centre
No.4, Lembah Jaya Utara
Batu 7 1/2, Bukit Belacan
68000 Ampang
Tel : 03-42911934 / 42957492

lupe lak, my son still non verbal lagi but sometimes he jes bluttered out like when he falls down at school, teacher dia cakap, al bukhari kata "adoi, sakitnye" or when he sees a big fish kat pet shop hari 2 dia kata "wow, big fish". hmmmm bile kite mintak ulang...hai sorry la... one time only...heheheh.

oh ya, lagi satu, ni teacher spices dia share dengan i. one very inspirational story in youtube. happy watching n NEVER GIVE UP ON OUR CHILD. Take care all..

http://www.youtube.com/watch?v=34xoYwLNpvw&feature=related
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Post time 2-7-2010 01:25 AM | Show all posts
kalau tak dapat link 2, go to you tune than search for Autism Angel - Carly Fleischmann. videonya 9.52 minutes. enjoy and stay strong. be happy. its not the end of the world to have an autistic child. my husband selalu kata, kita ada savior di akhirat nanti, anak kita penghuni syurga. so be happy. live life 2 the fullest and treat our son like he's normal. he is...
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Post time 6-7-2010 09:32 AM | Show all posts
Reply 1370# manjakani


    thanks manjakani i dh tgk youtube tu, terharu sgt dgn kesungguhan parent tu, motivated kita dont give up, keajaiban tu akan tiba cuma kt xtahu bila, so jgn berhenti berusaha dan mengharap. u ada website spices tak, kat mna eaa sek nya tu, byk improvement tak since anak u ke sana, bape fee nya. If sy xnak reg OKU ble ker sy hantar teraphy mana2 ker kena reg jgk.TQ
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Post time 13-7-2010 10:38 AM | Show all posts
Reply 1372# chayuk


Salam 2 chayuk...

i'm glad that u've watched the video. 4 ur question, nak masuk spices kene call them, set appt for them 2 evaluate n access ur daughter. bincang baik2 n jez tell them that u got the info from al bukhari's mum. spices is in wangsa maju section 2. normally they will cater for special kids around that area ie; wgsa maju, setiawgsa, melawati, ukay perdana, bkt antabgsa, keramat and gombak. tapi ada juga parents yang from cheras. if jauh sgt like pj or damansara, they all takut parents tak commit. n in spices, one of the parent or caregivers MESTI hadir in therapy session. no drop n tinggal. maid lagi tak boleh. so they really want the commitment from parents. Masa manjakani buat KPLI in seremban, my parents are the caregivers so my dad was the one yang replace me for all my son's therapy at spices. here's the phn no incase u haven't got it: 03-41498032

ni manjakani ada cerita sedih n jadi pengajaran forever. last saturday, masa pi tawakal hospital nak buka my son's stiches. he fell the week before so kene le jahit kat kepala. siap masuk operation theatre lagi coz doc kata the cut was deep. anyway, keluar dari tawakal 2 kami singgah le makan kat kedai mamak depan tawakal 2. n tengah2 makan tup-tup dia hilang. ingatkan dia pi main2 kat tepi tengok2 dh takde. i tanya my hubby dia ingat kat i. apa lagi... cari keliling macam orang giler. dekat 15 minit la jugak. than, tergerak kat hati i entah2 dia kat kedai coklat tak...coz before pi kedai mamak 2 dia lari pi kedai groceries nak coklat. n kedai coklat 2 jauh la jugak dari kedai mamak 2 dalam selang 5 kedai rasanye. ape lagi i lari la pi kedai 2 n betul he was there tengah ambik coklat. Ya Allah...kalau ada orang cekup dia bawak lari lagi mati i. i terus peluk dia n terus terjelepuk duduk kat situ n terus menangis. dah tak peduli orang dah. n sampai i kene asma attack coz menangis teruk sangat sampai tak dapat nafas. ada nurse tawakal datang nak tenangkan i...

so the moral of the incident was...walau macamana kite berhati2 pun dengan anak kite, by a split second je dia boleh lesap. When he was small i used 2 gune the lash my sis brought all the way from uk's mothercare. tapi since dia dah masuk kindy ni n nampak dia dah more aware n a bit pandai, pi jalan-jalan i tak la pakaikan lagi lash 2... but after the incident i'm back on lashing him. lantak lah orang nak kata kite lash anak macam lash anjing ke ape ke. yang penting my son was lost before n i serik Allah aje le yang tahu macamane perasaannye. sampai je rumah, terus bukak internet cari identification wristband for him. dah jumpe under national autisme society u.s n costnye USD24. mahal pun mahal lah. yang penting the ID wristband is a must for our kids.
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Post time 14-7-2010 05:24 PM | Show all posts
Reply 1373# manjakani



manjakani, just out of curiosity, have we met? i am Iman's mom. kalau tak silap we have met kat gleneagles masa hantar anak p terapi.
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Post time 19-7-2010 07:39 PM | Show all posts
alhamdulillah...dengan pengalaman yg ada selama ini membesarkan anak istimewa dan berkorban utk menjadi seorang suri rumah sepenuh masa utk melihat sendiri perkembangan anak istimewa ini akhirnya terbuka hati ini utk menabur bakti kepada anak2 istimewa yang lain....saya kini telah menjadi salah seorang tenaga pengajar di Handicapped Children Centre Penang...Dengan pengalaman yg ada selama ini serta ilmu yg bakal ditimba di HCC insyaallah akan digunakan sebaiknya utk anak-anakku ini...yg dulunya hanya seorang tapi kini telah menjadi 60 orang....
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Post time 19-7-2010 09:49 PM | Show all posts
Reply 1373# manjakani


    thanks for the addr. betul cakap u tu, mcmmna kita berhati2 pn mmg akan ada masanya kita terlepas pandang jgk, mmg kena pakaikan diaorg benda alah tu. I hari tuh mcm org gile jgk jadiknya. Bawak anak 3 org pegi playground nk biasakan dia dgn pasir, masa i dok menyusukan baby tup2 dia lari ke jln.kelam kabut i letak mcm tu je baby dlm stroller upside down pn, kelam kabut gi kejar dia. Benda pertama i buat tgk kete tgh dtg jerit dlu suh kete stop, dia dh dkt nk sampai jln dah, nasib xkena langgar kalau x menyesal tak sudah.
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Post time 22-10-2010 12:19 PM | Show all posts
mlm ni di NTV7 Tontoni Talian Hayat, jam 7.30 malam ini
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Post time 24-11-2010 07:19 PM | Show all posts
mna sumer forumer2 nih ada join forum ln ker
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Post time 6-1-2011 05:06 PM | Show all posts
teh upkan balik topik ni..

sesungguh sgt2 banyak info berguna dlm ni..

Maaf pada sumer forumer, mohon keizinan copypaste info2 penting dlm ni..

teh baru realized anak Teh autism, dah lewat sgt tapi better than never kan?
my amar amsyar turn to 10yo thn ni..
rupernya dia ada mutiple handicap, ingatkan 1 aje..

salam sumer
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Post time 7-1-2011 04:20 PM | Show all posts
hai semua.. sa merupakan pengunjung web ni.. sa pun ingin berkongsi pengalaman sa sbgi ibu yang mempunyai anak autism.. sa mempunyai anak yg nak msk 6 yrs dah dlm umur mcm ni dia baru belajar nak bercakap n bersosial ngan rakan2.. itu pun dah mcm2 dah sa buat.. nasib baik la dia ada adik yg becok mulut jd secara x langsung dia pun rajin ikut adik dia berckp.. mula2 sa tahu anak sa ADHD gelap dunia sa rasa sbb dlm sejarah family sa mmg x penah ada.. tp bila fkr2 TUHAN bg kita dugaan ini sbb DIA tau kita kuat dan tabah menghadapi dugaan ini.. tp skrg ni doc ade suggst ambil ubat RITALIN.. mslhnya sa risau akan effect pengambilan ubat ni.. so ade x sape2 bg anak ubat ni.. dan sa jg ingin kongsikan di mana bole speech therapist dkt HUKM, Hosp. Putrajaya dan Hosp. Serdang sbb setakat ni ada p ketiga3 tmt ni..  thanks all
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