Anak comelku Autistic Spectrum Disorder

KakFie

Originally posted by Delifrance at 9-11-2006 03:49 PM



sebab yg boleh2 tu sume tak pakai white flour

tosei - beras &  dal
maruku - tepung beras & tepong pulut

kueh apam tu pulak tatau kenapa dia kata ok kalau kasik makan esp kalau  ...

baru belajar buat tosei dengan MIL masa raya baru ni.  Yup... kacang campur nasik campur air campur yis.  Blend.  Voila...

Puree pun tak guna white flour...guna tepung atta kalau tak silap.

Rasanya kita patut share info tentang makanan, biscuit etc yang gluten free kat sini kot.  Sharing is caring...

[ Last edited by  KakFie at 10-11-2006 07:57 AM ]

JWA

sori.. nak tanya sikit. Boleh tak kita detect sendiri budak hyperactive ni atau kena jumpa doktor untuk sahkan dia hyperactive. hyperactive ni ada kaitan dengan ASD kan?

JWA

Originally posted by alongim at 16-8-2006 03:25 PM
i dapat tahu masa i stay kat England 2 years back. Masa tu kami dipanggil oleh Nursery teacher. Dia tanya tahu tak autistic. Apa bondonyo. Astetika i  tahule. Start hari tu i belajar apa dia ASD (A ...

susah jugak nak beza budak nakal dengan budak hyperactive kan. kadang-kadang nampak dia lambat cakap,nakal tapi paham jugak apa yang kita cakap. Perangai dia takde sangat la yang ciri-ciri yang along bagitau tu. kena jumpa doktor jugak ye nak confirmkan ASD ni.

ahtzue

Among the early signs and symptoms that parents and Pediatricians look for to alert them that a child needs further evaluation for autism include:

not smiling by six months of age
not babbling, pointing or using other gestures by 12 months
not using single words by age 16 months
not using two word phrases by 24 months
having a regression in development, with any loss of language or social skills
Infants with autism might also avoid eye contact, and as they get older, act as if they are unaware of when people come and go around them.

http://pediatrics.about.com/od/w ... 04_signs_autism.htm

Seeloknye confirmkan dgn doctor

KakFie

FANTASTIC gluten free rice cracker ni  ada jual kat GIANT.  Imported from Australia tapi ada halal cert dari Muslim body sana.



ada beberapa flavours.

Delifrance

thanks kakfie!



pening kepala sebab anak nye feveret food is roti canai and coco crunch

isk...

KakFie

Originally posted by Delifrance at 15-11-2006 02:44 PM
thanks kakfie!



pening kepala sebab anak nye feveret food is roti canai and coco crunch

isk...

eh..eh..samalah anak kak fie yang aktive bangett tu.  Agaknya ada darah penang kot, itu yang tak boleh tinggal roti canai...heh.heh...

[ Last edited by  KakFie at 15-11-2006 03:04 PM ]

Delifrance

Originally posted by KakFie at 15-11-2006 03:03 PM


eh..eh..samalah anak kak fie yang aktive bangett tu.  Agaknya ada darah penang kot, itu yang tak boleh tinggal roti canai...heh.heh...

ye la tu
anak kitep on ade darah penang

kah kah kah

cemana nih

honeybee1802

errrr..gluten tuh in white flour je ker?kalo flour yg jenih cekelat..wholemeal ke haper tuh...ada gak ker?tingat ngk bbc 1-2thn lepas...ada minah nih ada PPD.so dr dia try buat food theraphy antaranya buang gandum dr menu dia...pehtu dia buat test org main chess lak...sorang mkn mende high carb..sorang high protein...yg high carb dia relakx..but dia akan rs ngantuk..yg high protein dia alert but lelama dia tensen..nih kes mkn dg merah rsnyer..

Delifrance

dokter aku cakap white flour je tak elok utk anak aku...

tp gluten tu derived from any wheat, barley, oat and rye...

honeybee1802

Originally posted by Delifrance at 15-11-2006 03:55 PM
dokter aku cakap white flour je tak elok utk anak aku...

tp gluten tu derived from any wheat, barley, oat and rye...

i see like that maaa...anak jiran aku pung hyper gaks sket2..pompuan..semlm dia panjat pintu pagar..pehtu tejun...agaknyer mak dia kunci gate tuh kot..huhuhuhu...

ahtzue

Anak jiran tu baru lepas tengok cite superman kot...

Ada sesapa dah try kontek master Acupuncture tu.. Kalau berminat, tpt dia dekat area bukit bintang..
Aku sempat bwk 3 kali jee.. sebab kakak aku keja kat Penang. Master cakap dlm 4-6 month nephew aku boleh okay since dia punya level of ASD tu agak mild jugak. Tapi tak dapek laaa nak ulang..penang kl..jauh tuuu... sis aku just jaga diet dia jeee.. and sometimes kalau ada fulus lebih mintak Master poskan ubat..

Lawak jugak tgk anak menakan aku dok jalan merata dgn ada 3-4 jarum ataih kepala .. cam alien la plakkk :nerd:

yatiedin

Assalamualaikum semua.
saya baru jumpa thread ni. (sorry, this is going to be long)
Anak saya, Nadiah, pun diagnosed as autistic wkatu 3 yrs. tapi we all tak really bawak dia pegi proper testing lagi.
Nadiah was born premature so bila dia cakap lambat, semua org cakap dia mmg slow skit kot so we all tak risau sgt. tapi bila dah 3+ still tak cakap her peads suggest to consider autism. Actually dia boleh la cakap.. nyanyi lagu barney semua dah khatam tapi cuma tak nak cakap ngan orang je. Eye contact mmg tak de la. Satu lagi i notice dia suka colours.... warna warni. pencil colour ke, crayon ke mmg suka sgt. and suka mengatur benda2 ni in a line. at first ingat "wah! anak aku ni artistic jugak" walhal budak tu ada problem tapi tak sedar.

Anyway, peads dia suggest suruh bawak ke HB. I live in ALor Star so kat sini lagi la susah nak dpt treatment or consultation. Kat medical centre yg we all do bawak tu takde child psycho so tak leh nak buat test. Peads dia suggest lg bawak kat Loh Guan Lye Hospital kat Penang coz sana ada child psycho. Tapi bila nak buat appointment, full kena tunggu 4-6 mnths baru blh jumpa.

yatiedin

SO browse internet, jumpa la about Master Leong yg accupunture master kat bukit bintang tu. Actually dia kat Manara Promet kat Jln SUltan Ismail. pikir2 we decided to go. so husbang ambik cuti sebulan we went for treatment. First day mmg teruk la sbb nak masukkan jarum tu dia punya meronta... mak ai nyaris2 saya pun nak terpelanting. last2 dia nangis2 sampai tertidur. so sempat la buat treatment 45 mins. tapi lepas tu we all terus balik apartment. slalunya sehari org buat 2-3 sessions. 1 hr cucuk, rest 45 mins, then another hr and so on.

balik tu dok termenung ngan husband camna nak bawak dia lagi esok tu. pikir punya pikir, decided to try for at least a week.
second day dgn hati berdebar2 bawak dia masuk clinic tu... tgk2 dia relex je. ek skit je waktu nak masukkan jarum. lepas tu member tak kacau pun. so we all buat 2 sessions a day from then on. hari2 siap bawak laptop utk Nadiah tgk segala mak nenek vcd dia.
apart from the jarum2 tu, ada ubat makan. powder campur ngan air or food. almaklumlah chinese herbs... dia punya bau... i pun tak tahan. last2 campur ngan soup nadiah. kesian la dia hari2 makan soup ngan nasik or noodles. powder tu kena makan 3 kali sehari plak tu.

ramai budak2 lain lg yg ada kat situ. ada from indo, qatar, US, kl, sabah and singapore. tapi budak2 ni semua ada arial kat kepala. dalam semua2 kat situ Nadiah paling muda. yg 12 thn pun ada. tapi mosttly 4-6 la.

yatiedin

Alhamdullilah, lepas seminggu mmg nampak perubahan. semua yg selama ni nadiah dengar from vcd dia start keluar. satu hari dia recite ABC sampai Z without mistake. tak penah pun dengar dia practise sblm ni. Then dia more aware of her surrounding.. dulu kalau main kat playground lantak la bebudak lain buat apa pun, tapi lepas tu i noticed she will stop and look at what other kids are doing and dia pun ikut. also dia mau kawan dgn orang. eye contact pun better.

Also treatment tu ada diet dia... very strict. no sweets at all... benda2 yg sugarfree tapi still rasa manis pun tak leh. fruits cuma apples, pear, orange and guava je... tu pu kalau blh yg kurang manis. dairy tak leh langsung. kena bagi soya tapi tak leh manis la. ada afew things lagi tapi tak ingat.

price per treatment RM138 untuk 2 sessions a day plus 3 sachets of medicine powder. so kira2nya i buat treatment tu for a month plus petrol and food adalah lam 5k kot. itu 2 sessions je. most buat 3. for those yg duduk jauh blh rent apt from the clinic within walking distance.

after 1 month tu i tak pergi dah coz i notice actually Nadiah tak teruk sgt banding ngan bebudak lain. at least she can speak and sometimes will tell what she wants cam susu. tapi bebdak lain kat situ hyper gila tak tak sepatah pun yg keluar dari mulut.
ni website dia:
[url= http://www.geocities.com/autismtole/]Tole's Institute[/url]

yatiedin

balik kedah i tried taking her to penang jumpa child clinical psycho. it's been almost a year now and byk sgt perubahan kat Nadiah. we understand each other a lot better. dia dah tak throw tantrums lg dah. apa i cakap dia listen and buat any orders. dah tak line up toys lagi dah and dah pandai main with lots of imagination. cakap pun dah mau especially bila nak suruh kita buat apa untuk dia. there's still no two way conversation tapi i am confident soon we'll be having one with her.

acupunture is gd but it's like a booster. selagi dok pi she will improve tapi bila kita stop graph menurun skit. to me training is better. learn how to teach ur children to socialize, to play and to live. tapi of course, diff auties responds to diff treatment. I guess we just hv to try, try, try.

ni gambar nadiah waktu dok buat treatment kat Tole. see the arials on her head?

It has been quite sometimes i tak join forum ni.

So happy to find out ramai yang sedia berkongsi pengalaman

nak handle anak2 kita yang autistic ni.

My second doter has mild autistism. She is 3 plus right now.

(orang akan kata most of autistic children are boy..)

My greatest concern, boleh ke anak i ni pergi sekolah biasa?

Kalau tak layak pun tak pa, me tak kisah asalkan ada tempat

yang sedia ajar dia accoroding to her own pace.

just want to find the right and suitable place for her..

Nak tau juga which kindy yang u all hantar terima kanak2 autistic ni?

Smart reader junior ?

right now my doter duduk dengan maid. kalau hantar kindy paling

susah dari segi makanan coz dia tak makan nasi.

Dulu i tapau roti.

Tapi lama2 nursery tu macam tak peduli kat my doter. Bila i balik rumah

tengok2 roti tu macam tak sentuh pun...sebab tu i ambik maid balik.

Tapi i tengok ramai juga yang hantar anak pergi kindy, have shown some improvement which is good.

Means that it is too early for me to give judgement that my aufa will have to attend special school...

Few months ago, I went to  pusat jagaan kanak2 autism kat jalan gasing PJ

That centre is funded/managed by NASOM.

Sedihnya i tengok tempat tu. sebelum pergi i rasa macam ada sedikit harapan la kan.

tapi bila pergi tengok dengan tilam busuk bergelimpangan, broken toys...terus cancel my intial plan to sent her there.

I would say that centre is  so not well organised. but still ada parents send their children there. they actually have no  options..

So sad bila pikir balik, all this while mesia hanya membangun dari segi fizikal...

But recently dalam RMK 9/ 2007 budget (either one, can't recall) kalau tak silap gov allocate quite a lot of money

for autistic children. tapi apesal macam senyap je...

i sebenarnya tak sempat khatam sume postings lagi. will do that later..

really have to go now....

[ Last edited by  isaura at 26-11-2006 09:58 AM ]

Originally posted by Delifrance at 8-11-2006 04:37 PM


hi norsha...


i went to see dr kader yesterday..
basically... dia kata avoid roti canai, biscuits sebab sumetu ade proceesed tepung gandum that is bad for our kids and their brains.. kalau ...

Deli thanks a lot dear for sharing... tadi i baca skip2. ni baru terbaca ur posting.


I memang dah memang kurangkan biscuits dalam my doternye diet coz i rasa my doter memang ba...nyak sangat makan processed food..

Dia hanya makan biskut tertentu, white bread (dah try intoduced wholemeal, tak jalan), koko krunch, bihun,pasta. no veges/fruits at all.

My doter boleh habiskan biscut tiger berkrim yang pek RM2.40 tu sekali hadap je.

Nasi satu sudu pun jenuh berperang :geram:

At least anak korang nak jugak makan nasi,mine ya allah langsung tak nak.

nak makan nasi macam makan ubat. i think dia lebih suka makan ubat dari makan nasi  :nerd:

Kalau pergi supermarket tak dapat apa yang dia nak dia kan jerit tidak! tidak! lepaskan saya!

aku tak pasti filem mana dia quote ayat tu..segan jugak kat orang sekeliling..silap2 orang ingat

aku culik anak orang..

[ Last edited by  isaura at 26-11-2006 11:31 AM ]

Originally posted by KakFie at 15-11-2006 02:40 PM
FANTASTIC gluten free rice cracker ni  ada jual kat GIANT.  Imported from Australia tapi ada halal cert dari Muslim body sana.



ada be ...

Bunyi macam sihat sangat biskut ni. nak ke aufa makan..

Tak pe..anak2 kita ni kena try and error baru tau kena ke tak dengan

selera diorang.

Masalahnya jenis yang tak nak tukar selera tu yang parah..adeh..

Karenah anakku yang sorang ini memang menduga kesabaran ku.

Kadang2 tu masak something for her dengan penuh kasih sayang dan kesungguhan..juz for her...

Sometimes pukul 10 malam goreng bihun or pasta for her sebab selalu rasa bersalah  coz dia asyik makan

roti, biskut macam tu je sebelah siang...

Alih2 dah siap masak tak nak makan ....

Originally posted by suruli at 29-8-2006 07:48 PM


Mmg budak2 mcm ni  lebih suka berbahasa inggeris compared to malay sb lebih senang macam u cakap tu. So, anak i ni since dia pandai nak berckp2 dia memang lebih kepada english . memang dia bias ...

Anak kita feelnye  serupa la suruli.

Me memang cakap 2 languages at home. My eldest doter can speak english and malay.

Her sister yang ada mild autism preferred english to malay.

Ada sekali tu masa main kat luar kakak dia ajar ini pokok, ini daun,  adik dia marah2 sebab tak nak ikut.

Kalau kata tree, leaf nak pula mengikut..

Autistc child ni diorangnye memory memang superb kan..

Sabar jelah dengan karenah anak2 kita..segala yang berlaku tentu ada hikmahnya..

Me kat putrajaya juga..tengah cari kindy sesuai for her.

Kalau kat area bangi ada tak special kindy for them?

Bila i baca postings kat sini i memang nak tergelak coz perangai anak2 kita memang sama dan

kadang2 feel depa memang funny especially kalau bab copy sentences.

They cant communicate..they just memorising those words...

Macam my doter dia nak tunjuk sesuatu dia akan kata tengok, tengok copy dari cerita dora tv9.

Contohnya i kata pada dia : aufa nak air ke? dulu kalau nak air dia akan kata "air" saja sambil tunjuk.

Sekarang ni kalau nak air dah jad: air ke. So kalau nak air dia sebut: air ke, air  ke. :nerd:

Benda ni terjadi masa balik rumah my in law raya hari tu.

Nape boleh bertukar pulak agaknya ye??

Tapi yang buat i sedih ialah orang lain tak faham dengan karenanh anak kita.

Orang tengok anak i macam bingung sikit.

Tambah2 la dia ada cousin yang sebaya. memang dia nampak slow sangat and lost.

Sampai ada sekali tu my mother in law kata, mana aufa, jangan2 dah keluar.
Ntah pakai slipper ke tidak. i terkedu dan terasa jugak..sedih jauh di sudut hati.

I know she cant talk and sometimes looks weird and lost but kalau keluar rumah

mesti pakai slipper, dia tak pernah berkaki ayam. Dia geli nak pijak  tanah dan pasir...

Masa first time pergi HUKM doc pernah sebut autistic child dia ada sensory prob sebab tu quite choosy

dalam memlih makanan.