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Author: alongim

Anak comelku Autistic Spectrum Disorder

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Post time 23-8-2006 11:37 AM | Show all posts
http://www.bbc.co.uk/ouch/tvradio/autism/thoughts.shtml
http://www.bbc.co.uk/drama/magnificent7/

HI along...ini ler story yg saya tgk hari tuh..hopefully dia leh ulangtayang..coz tak tertgk abis...documentari pun ada...along dah try hukm ker?
know what misunderstanding tuh kat skolah rsnyer maybe ada about those children yg ada mende2 gini..maybe mereka dilabel as being naughty..mcm my collegue..anak dia quite delayed..i rs mcm anak bongsu dlm citer le gamaknyer..skang tgh under treatment gak ler.dia citer anak jiran lagik tak terkawal...tv kat umah ntah baper kali tkr,then ada skali headmaster call bapaknyer suh dtg skolah,rupernyer anak org tuh g kencing dlm bakul sampah blkg kelas depan classmates dia..huh..cikgu besor tanya bapaknyer..apa dia nak buat ?huh..apa nak dibuat?
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 Author| Post time 23-8-2006 11:59 AM | Show all posts

Reply #21 honeybee1802's post

many thanks honey atas info nih.

memang budak2 ASD ni org akan cakap nakal, jahat dan semua gelaran yang tak baik tu. Macam my son,kalau balik kampung memang kena gelar macam2. Yelah org kampung mana tahu apa ASD. Parents akan disalahkan . Tak pandai didik anaklah, manjakan anaklah. Rasanya dah macam2 denda kita bagi kat anak kita semata2 nak disiplinkan dia. Tapi memang budak ASD ni special. Pemikiran dia tak sama cam manusia normal yang lain. Apa yang mampu I buat. At least sekarang ni my parents dah faham kenapa anak I camtu. Kalau tak sebelum ni asyik komen, kenapalah cucu aku ni lambat cakap, kenapalah lasak sangat budak ni....kita ni sebagai emak, sedih yang amat sangat bila dengar komen-komen ni. For me,  ASD bukan satu kecacatan tapi 'kelambatan' (delay) dalam pertumbuhan komunikasi dan interaksi sosial anak2.

I belum cuba HUKM.Sesak memikirkan nak ke HUKM apatah lagi crowded dan kena beratur lak bila nak tunggu giliran kita. Tapi kalau dah tak de pilihan...what to do!!!! Kena gagahkan diri jugale...
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Post time 24-8-2006 12:07 PM | Show all posts
http://www.webmd.com/content/article/73/87239.htm
kalo dak autisme nih dr check camner ek?
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Post time 25-8-2006 07:25 AM | Show all posts

Reply #20 alongim's post

opss..norsha tersilap bagi nama NGO tu..sowy2..

okay..sebenarnya KIWANIS..nie link ke website dia.. http://www.kiwanis.org.my/

if u are able to find suitable place..do let me know yer..sb now norsha di swak so mmg takde any centre cater for these special kids camnie..hanya ada 1 centre jer for autism kids tapi they cannot accept my son sb my son is able to read..so, he's consider mild..hopefully, end of this year norsha will move to kl..senang sikit nak cari help centre for my son..

ps..ur son looks normal physically? boleh paste pic dia tak?
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Post time 25-8-2006 08:59 AM | Show all posts
terpikir macam mana 30/40 years back before autism was widely known kat Malaysia ni, macam mana agaknya kanak-kanak yang autistic masa tu?  Apa yang parents masa tu buat? or were they deemed as failures and locked up in cellars?  Ini imagination yang terlebih-lebih la ni tapi memang terpikir macam mana keadaannya waktu tu.  If it is partly genetic, bagus jugak kalau kita dapat belajar cara ibu bapa kat kampung zaman dulu-dulu handle anak-anak yang autistic.  Unless autism is something new...is it?
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Post time 25-8-2006 02:15 PM | Show all posts

Reply #25 KakFie's post

rasanya autism tu mmg dah dari dulu lagi mmg ada..

tapi kanak2 nie dulu2 mesti diconsiderkan stupid sb dia org slow learner..so, kat sekolah sure masuk kelas belakang sekali...cikgu pun couldnt care less...kat rumah maybe parents pun anggap kanak2 nie stupid...tak boleh handle anything...norsha rasa parents sure ajar these kids how to survive in life jer..lain2 mereka tak harap...sb norsha pikir my kid pun camtu..i just pray that he's able to survive in life if i'm not around..mmg sgt2 risau sb social skill dia org sgt2 limited, sgt lurus...
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Post time 25-8-2006 04:51 PM | Show all posts
Originally posted by norsha at 25-8-2006 02:15 PM
rasanya autism tu mmg dah dari dulu lagi mmg ada..

tapi kanak2 nie dulu2 mesti diconsiderkan stupid sb dia org slow learner..so, kat sekolah sure masuk kelas belakang sekali...cikgu pun couldnt  ...


ya lah kan...as long as they can survive dan successful in their own way cukuplah kan.  Selamat dunia dan akhirat insyAllah.:pray:
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Post time 25-8-2006 05:21 PM | Show all posts
erm..br igt dulu kat kg ada sorang nih ms skolah rendah tak reti bc pun.skolah menengah br leh bc..skang dah jd lecturer...adik member lak skolah rendah pun akak dia kata punyer le bodo..skali terantuk paler ms jatuh tangga leh score plak..ms tuh tatau ler apsal depa nih mcm tu kan..sbb mana ler kite seme tau kan?
norsha..kat skolah skang ada kelas khas tak?
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Post time 25-8-2006 05:34 PM | Show all posts
Originally posted by honeybee1802 at 25-8-2006 05:21 PM
erm..br igt dulu kat kg ada sorang nih ms skolah rendah tak reti bc pun.skolah menengah br leh bc..skang dah jd lecturer...adik member lak skolah rendah pun akak dia kata punyer le bodo..skali tera ...


cousin hubby akak pun ada sorang cam tu.  Hubby cerita masa sekolah rendah dia langsung tak reti baca, form 3 baru boleh baca.  Biasalah orang kampung cakap dia lembab.  Sekarang ni oklah, berjaya jugak dengan hidup dia alhamdulillah.  Terpikir jugak mungkin dia one of those dengan difficulties cam dyslexia ke dsbnya tapi manalah kita nak tahu kan..
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Post time 25-8-2006 05:46 PM | Show all posts

Reply #28 honeybee1802's post

ada...dia panggil kelas inklusif..

tapi norsha tak agree sgt dgn educational system msian nie for autism kids..yg mild tu okay laa jugak sb at least some of them boleh pass exams...tapi kalau yg mmg autism...mana dia org boleh jawab standard exams msian...patut these kids kena bagi educational system yg lain...tu pesal laa einstein drop out from school, so as bill gates...sb dia org just cant cope with the system..
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Post time 25-8-2006 07:07 PM | Show all posts
Originally posted by alongim at 23-8-2006 11:59 AM
many thanks honey atas info nih.

memang budak2 ASD ni org akan cakap nakal, jahat dan semua gelaran yang tak baik tu. Macam my son,kalau balik kampung memang kena gelar macam2. Yelah org kampung ...


Anak u lelaki, but mine girl, jadi nampak a bit weird bila dia buat perangai tak betul dia tu... kadang sampai tak taunak ckp apa, nangis sorang2 mengenangkan anak yg sorang ni. Dugaan tuhan kat kita agaknyer. SO baru seminggu ni my father request suh anak i ni duk ngan dia untuk sementara waktu. Nak jaga budak2 mcm ni memang susah. sentiasa kena sabar, nak pulak sekarang ni i dah ada baby sorang lagi baru 11 bulan. So kadang2 tu, tak tahan juga. naik jugak la darah kita dibuatnya. So I pun ckp kat my parent, amik lah anak i ni tuk sementara, since diorg pun nak jaga. tapi ni baru seminggu i dah tak tahan rindu. Sib baik umah parent i tak jauh, so dok berulang ler dari Putrajaya ke Kajang. Mana tau kot org tua lebih sabar. So kalau ada tempat utk bagi theraphy kat budak2 mcm ni bagi ler tau ke kawan yer. leh kita sesama gi.
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Post time 25-8-2006 09:32 PM | Show all posts

Reply #31 suruli's post

masuk website yg norsha bagi link kat atas tu..they are very helpful..ur bless sb u duk kat kl sana, senang nak dapat help..

apa masalah suruli with ur girl?
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Post time 26-8-2006 07:33 PM | Show all posts
Baru sembang panjang tentang autism dengan seorang kawan who happens to be a doctor.  Dia memang ada deal dengan autistic cases so senanglah dapat free consultation..:bgrin:

Ikut kawan kak fie tu, you can tell whether a child is autistic or not only by looking at him/her...ini from an experts eye viewlah..kita mungkin tak tahu.  Autism banyak involves social skills and development jadi kadang2 its kinda  obvious

Dia mentioned tentang NASOM - National Autism Society of Malaysia - boleh bantu parents/child with autism

IMPIAN - special school for autistic children.  http://www.impianautism.com/

Ini symptom autism yang kak fie dapat dari webpage NASOM:

stand-offish manner
inappropriate laughing
echolalic
no fear of real dangers
apparent insensitivity to pain
difficulty mixing with other children
adverse to cuddling
sustained odd play
crying tantrums - extreme
distress for no discernible reason
indicates needs by gesture
acts as deaf
unusual eye contact
resists normal teaching methods
spin objects
inappropriate attachment to objects
uneven gross / fine motor skills
resists change in routine
marked physical overactivity or extreme passitivity

[ Last edited by  KakFie at 26-8-2006 07:34 PM ]
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Post time 28-8-2006 10:11 AM | Show all posts

Reply #31 suruli's post

sabar le suruli..anak2 mcm nih special children...igt lagik dlm movie tuh..the mother said something like...'my children suprised me everyday..'mmg tersentuh hati dgr..
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Post time 28-8-2006 07:27 PM | Show all posts

Reply #33 KakFie's post

insensitive to pain tu mmg very obvious dari dia baby..ingat my son time tu kuat laa konon2 sb everytime injection for baby..mmg dia tak sakit, boleh relax jerr..rupa2 nya bila dia dah besar sket, baru norsha perasan yg dia mmg tak rasa sakit..kalo dia nangis sb dia tensen sb terjatuh ke, terantuk ke..tapi bukan sb sakit..

and the rest yg kak fie bagi indication tu..almost 90% mmg ada kat my son tu..
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 Author| Post time 28-8-2006 08:54 PM | Show all posts

Reply #24 norsha's post

anak i fizikal dia ok, normal cam bebudak lain. He's no different with other children. Sama je...bezanya dia sangat lurus, tak boleh cakap properly dan aktif (kalau tak de benda yang boleh keep him busy). Nak tergelak.. ada sekali tu, dia boleh cakap tiba-tiba je. Complete words. Masa tu kami sekeluarga kat kedai mamak...Kami belum order apa-apa lagi. Baru je duduk. Out of nowhere...tiba-tiba terdengar suara my son,"Boss, roti canai satuuuuuu"......he he he..ni trait budak autism...suka copy .....he he he...tergelak I and hubby macam nak  rak time tu...
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 Author| Post time 28-8-2006 09:00 PM | Show all posts

Reply #28 honeybee1802's post

memang budak2 ASD slow learner. Ada sorang kawan sekampung...masa kat sekolah...selalu dapat gred rendah..kelas tercorot sekali. Masuk sekolah menengah still lambat...sehinggalah dia SPM...dapat rendah jugak...mak bapak bergolok bergadai nak jadikan dia ni orang...masukle kolej swasta..tup tup jadi best student...sekarang ni..ha jgn tak sangka..jadi engineer dah....ternganga I dengar berita ni...
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 Author| Post time 28-8-2006 09:09 PM | Show all posts

Reply #37 alongim's post

autism ni selalunya prone tu boys...sebab  tu dulu i ingat anak i ada masalah pendengaran...bila buat hearing test...ok je tak de prob...at least lega hati anak tak pekak......my son memang begitu. Budak2 autism kalau facinate kat benda2 yang dia minat tu punyalah luarbiasa. sebab tu kadang2 dia suka gelak sendiri bila dia teringat cerita2 cartoon yang  dia suka...terkejut gak mula2...bila dah tahu ini adalah trait autism...baru boleh terima...
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Post time 29-8-2006 01:38 PM | Show all posts
sama ler kita alongim, tapi anak i sekrang dah pandai cakap in full sentence, tapi pelat macam orang putih nak ckp melayu.. kadang kelakar jugak. tapi bila sesekali dengar bercakap kitorang sume surprised.. waaahhh...tapi i rasa anak i ni discover cepat ckit la... sb dia dah start mixed around. Tapi entah ler.. tahun depan nak masukkan kindy.
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 Author| Post time 29-8-2006 01:56 PM | Show all posts

Reply #39 suruli's post

tapi memangle..anak I cepat tangkap bahasa Inggeris berbanding bahasa Malaysia as his vocabulary. Maybe sebab English sukukata perkataannya hanya 1-2 berbanding BM yang sampai 3-4 sukukata. Susah bagi budak2 ASD. Cam semalam, tiba-tiba dia cakap "Ishika" beberapa kali sambil hentak-hentakkan kai cam orang kawat. Ingat apa ke bendanya 'ishika' tu rupanya 'merdeka'...bila suruh cakap 'freedom'...cepat je dia cakap tanpa pelat....
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