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kongsi pendapat parent yg ader anak berpenyakit
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Anak yum3 melecur sebab air yang baru didih dalam kettle tumpah kat dia (atas lantai). Masa tu si kecik tu tengah merangkak... pakai pampers je. Itu yang kena semua kaki dan tangan. Dah nama pun kemalangan kan...
Ace.. penyakit anak you mcm anak I pulak... memanjang on/off demam
Both my son (5 yrs) and daughter (3 yrs) mcm gitu pulak rezekinya. Dua-dua memang Dr 'gemar' sgt amik darah, esp kalau musim2 denggi ni. Yang si Abang tu pulak memang ada 'ITP-sejenis platelet disorder'. Blood count dia mmg rendah skit.. cam org kena denggi.
So far, takde apa-apa. Mungkin immune system diorang kureng sikit. Ye la... maknya pun tak makan sayur/buah masa pregant. Dan taknak amik supplement. Agaknya pasal itulah budak-budak ni sakit memanjang.
Dah jadi regular customer klinik tu aje. But I tgh ikhtiar bagi supplement kat diorang. Tak elok jugak selalu makan ubat klinik.. DRUGS. |
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kesian dan sayu epal baca pengalaman ibu2 kat sini...epal amat memahami kesengsaraan & kesedihan yg terpaksa ditanggung apabila melihat anak sekecil itu terpaksa menanggung derita yg tak selayaknyer utk mereka....semua tu mengajar kita utk lebih menginsafi, tabah dan redha dengan kehendakNya. epal cakap macam ni sebab epal pun ada anak yg berpenyakit...masalah usus..3 kali menjalani pembedahan semasa usia 4 hari, 4 bln dan 6 bln. kalau boleh epal tak mahu terlalu pikirkan sgt...tapi bila baca pengalaman ibu2 kat sini epal jd sayu dan terpanggil nak berkongsi cerita...
epal bekerja, tapi sejak yg no 2 ni sakit epal terpaksa selalu cuti...nasib baik bos faham...tapi kita kadang2 rasa tak sedap juga asyik cuti je.... thn ni jer dah 3 kali admit hosp. sekali admit lebih kurang 5 hari...apa je pengalaman kat hospital tu epal dah rasa...layan anak yg meragam kesakitan lagi..memang menguji kesabaran dan ketabahan....at the same time tak tertanggung rasanya lihat baby menanggung sakit...kalau takde sokongan dari suami mmg boleh jadi tekanan perasaan....terkenangkan anak yg tinggal kat rumah lagi, anak yg sakit ni dah tentulah sentiasa perlukan perhatian...
lagipun bila jadi perkara2 macam ni, suami adalah kekuatan kita..walaupun kita ada adik-beradik atau saudara mara dan rakan2 yg simpati, mereka takkan memahami apa yg kita rasa....mereka hanya boleh tunjuk rasa kasihan, tapi yg menanggung kita & suami.....
anak epal kalau sihat mmg aktif dan keletah..tak siapa pun menyangka dia ni sakit...tapi bila sakit dia dtg kang, siang elok je main2, tiba2 mlm kang dah lembik....perasaan kita pun jadi tak tenteram....pujuklah hati sendiri, kena tabah hadapi kenyataan....:lebai: |
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epal,
ada tengok dlm medic tv hari tu pasal hirshprung disease ni,.. kebetulan the day before that baca epal punya experince.. masa baca tu sedih jugak la... tapi bila tengok medic tv tu, tengok baby tu terlantar lepas kena bius dan mak dia berjujur air mata.. dlm hati terdetik " mcm ni la yg epal lalui ".. sebak sgt rasa masa...
aku ni anak kena nebuliser pun menangis bagai nak rak... kuat sungguh semangat kawan2 semua ya... |
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sedihnya aku baca yum3..
ay4...bersabarlah..
pasti ada balasan baik di sebalik pengorbanan...
anak putu pun boleh dikatakan dah 3 x keluar masuk wad pasal bronchi.. dan lelah..
nanti bila free kita cerita.. |
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Originally posted by mias_2004 at 9-3-2006 12:26 PM
epal,
ada tengok dlm medic tv hari tu pasal hirshprung disease ni,.. kebetulan the day before that baca epal punya experince.. masa baca tu sedih jugak la... tapi bila tengok medic tv tu, teng ...
a'ahh..samalah tu....tapi budak tu sebahagian kecil jek usus dia buang..anak epal keseluruhan usus besar kena buang.... |
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Originally posted by putubambu at 9-3-2006 12:38 PM
sedihnya aku baca yum3..
ay4...bersabarlah..
pasti ada balasan baik di sebalik pengorbanan...
anak putu pun boleh dikatakan dah 3 x keluar masuk wad pasal bronchi.. dan lelah..
nanti bila fre ...
dulu ay4 pun ader lelah masa kecik....puncanya masa baby bila batuk my mom biarkan jer..ingat batuk biasa...my mom kalu masa pendidikan jasmani mesti suruh bg surat doc. kat cikgu....tapi sebab keinginan nak bersukan i senyap2 masuk sukan...alhamdullillah lepas i aktif penyakit lelah tu hilang....so kesimpulannya jgn manjakan sakit nih...lagi dimanja lagi menjadi.... |
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Originally posted by ace at 6-3-2006 02:34 PM
Saya nak ucapkan tahniah dan terima kasih pada ibu2 yang sudi berkongsi cerita disini. Berat mata memandang berat lagi bahu memikul. Ucapan tahniah bukan kerana "u deserve it", tapi tahni ...
ay4 ader beli satu ubat syrup utk antibodi baby...lupalah nama dier....baby i minum alhamdullilah ok... |
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Originally posted by yum3 at 6-3-2006 04:24 PM
Anak yum3 melecur sebab air yang baru didih dalam kettle tumpah kat dia (atas lantai). Masa tu si kecik tu tengah merangkak... pakai pampers je. Itu yang kena semua kaki dan tangan. Dah nama pun ...
betul!!!!lama2 ubat terlampau banyak ianya tak boleh hadam...lagi bahaya....buah pinggang tak boleh prose lagi dan hati tak boleh tapis ubat2 nih....so fikirlah akibatnya.... |
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Originally posted by epalhijau at 9-3-2006 12:01 PM
kesian dan sayu epal baca pengalaman ibu2 kat sini...epal amat memahami kesengsaraan & kesedihan yg terpaksa ditanggung apabila melihat anak sekecil itu terpaksa menanggung derita yg tak selaya ...
syukur alhamdullillah hubby u sbg pendorong....my mom just lonely...harungi segala dugaan by her own....cuma i tempat dier cerita kesusahan dier...tak penah dier mengeluh.....masa my bro asyik ckp nak mati...my mom give jugak...tapi my mom kuatkan semangat...sebab org sakit ni memang beremosi.... |
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Ada khabar terbaru ke from pinatbate, ay4, noamee dan putubambu?
Berkongsi cerita dan uodates boleh meringankan sikit kegusaran di hati. |
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tak ada apa-apa yang menarik..semua dah jadi rutin biasa...setiap bulan saya ke HKL utk ke klinik pakar dan appoiment utk masuk darah dua-atau tiga hari berikutnya di unit rawatan harian (day care)....makna nya sekurang-kurangnya dalam sebulan sehari hasben cuti,sehari lagi saya pulak cuti..kalau anak terpaksa masuk wad (setahun empat lima kali lah jugak )lain pulak ceritanya..
.majikan kami memang dah maklum.waktu saya pindah tempat kerja dulu pun itulah perkara utama yang saya beritahu boss.Alhamdulillah boss faham...
cuma ada jugak la segelintir kawan sekerja yang jelous saya selalu cuti...agaknya dia ingat seronok sangat bercuti dalam wad hospital dengan keadaan anak sakit ...
Macamana pun saya selalu ingatkan diri saya supaya tak mencampuradukkan masalah peribadi dengan urusan kerja...jangan sampai orang ingat kita cari peluang dengan masalah anak sakit gini..pernah saya ingat nak berhenti kerja dan jaga anak saja tapi..anak sakit ni banyak nak pakai duit ...saya sabarkan hati ...buat kerja sebaik yang boleh,jujur pada majikan dan selalu bersabar...
Alhamdulillah ramai kawan-kawan lain yang menyokong saya...:tq::tq: |
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Parents to learn sick baby's fate
Baby MB cannot chew, swallow or breathe for himself
The parents of a severely disabled baby boy at the centre of a landmark right-to-life case will find out on Wednesday whether he will live or die.
They are fighting a hospital's bid to turn off the ventilator that keeps the child, known only as Baby MB, alive.
The 17-month-old boy has genetic condition spinal muscular atrophy - which leads to almost total paralysis.
Medics say his life is intolerable and that he should be allowed to die. His family say he has a life worth living.
The High Court in London has heard how the child, who cannot breathe for himself and is almost totally paralysed, also cannot chew or swallow.
There will be times... when a court will have to say that the best interests of MB are now served by withdrawing ventilation
Huw Lloyd
Counsel for the hospital
He suffers from the most severe form of spinal muscular atrophy and has lived in a high dependency unit in hospital since he was seven weeks old.
A court order bans the identification of the boy, his family, the hospital where he is cared for and the medics involved in his care.
But details of the case can be reported after BBC lawyers made an application for the hearing to be held in public.
Mr Justice Holman, who is hearing the case, said it was probably the first time a court had been asked to decide the fate of a child who probably had some cognitive function.
Doctors at the unnamed hospital where baby MB is cared for have told the court they believe the invasive ventilation which is keeping the child alive is likely to be uncomfortable.
Nursery rhymes
One unnamed medic told the court he believed the baby had an "intolerable life" and that he had felt uncomfortable about his treatment for a long time.
His parents, however, insist their child responds and recognises and enjoys their visits to hospital
They told the court he enjoyed certain children's films they played for him and nursery rhymes which his brother and sister sing to him
They want him to have a tracheotomy which could make long-term ventilation easier so he is able to leave his hospital bedroom and explore the grounds, albeit with the assistance of medical staff.
The child's father has told the court he did not think it was right for anyone to decide if the baby should live or die.
Counsel for the parents, Charles Foster, said in his final submissions that the application to switch off the baby's ventilator was premature.
'Agonising decision'
"The benefits/burdens analysis clearly comes out in favour of continued life," he added.
He urged the judge to proceed on the basis that the child had cognitive function as that had been the overwhelming evidence of the parents.
Huw Lloyd, counsel for the hospital trust, said in his final submission that the judge faced an "agonising decision".
"These are loving and devoted parents, but your lordship has to make a decision in the child's best interests and there will be times, and we say this is one of them, when a court will have to say that the best interest of MB are now served by withdrawing ventilation."
He added that all the objective evidence was that the case for the child being able to enjoy time with his family and recognise them was not made out. |
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Originally posted by ay4 at 9-3-2006 06:12 PM
ay4 ader beli satu ubat syrup utk antibodi baby...lupalah nama dier....baby i minum alhamdullilah ok...
ay4, leh tak check aper nama ubat syrup tu? kalu ok, nak bg baby kuku minum lar.. |
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Originally posted by kuku^panjang at 15-3-2006 04:15 PM
ay4, leh tak check aper nama ubat syrup tu? kalu ok, nak bg baby kuku minum lar..
nanti ay4 check....sejak baby ay4 minum ubat tuh...tak ader pulak dier selalu batuk@ selsema.....ubat tuh boleh buat air minum dier everyday... |
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Originally posted by yum3 at 13-3-2006 11:47 AM
Ada khabar terbaru ke from pinatbate, ay4, noamee dan putubambu?
Berkongsi cerita dan uodates boleh meringankan sikit kegusaran di hati.
terima kasih krn keperihatinan yum3..
anak akak biasalah..lendirnya sentiasa ada..ari2 nak kene suctioning..yelah dah pakai tiub tracheastomy dan ventilator mmg nak kene jaga kebersihan dia...mudah dpt jangkitan lebih2 lagi selsema.
W'pun anak akak gitu keadaannya..alhamdulillah dia nampak sihat.Kalu dulu asyik kuar masuk hospital. |
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Originally posted by honeybee1802 at 15-3-2006 12:32 PM
Parents to learn sick baby's fate
Baby MB cannot chew, swallow or breathe for himself
The parents of a severely disabled baby boy at the centre of a landmark right-to-life case will find ou ...
citer nie akak ada terima...anak akak juge spinal muscular atrophy dan gunakan ventilator..skrg dia dah 4 thn |
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Originally posted by noamee at 17-3-2006 12:00 PM
inilah pic anak akak yg terbaru.
Semoga Allah tabahkan hatimu kak...
Sedih dan pilu saya melihat anak akak...
Penyakit ini ada peluang utk sembuh tak kak...??? |
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Originally posted by alysa79 at 17-3-2006 02:47 PM
Semoga Allah tabahkan hatimu kak...
Sedih dan pilu saya melihat anak akak...
Penyakit ini ada peluang utk sembuh tak kak...???
ini adalah anak yg kedua mengidap penyakit yg sama,anak perempuan sulong akak telah meninggal dunia ketika umurnya 13 bulan.,7 thn yg lalu.
peluang utk sembuh sukar utk diramalkan...keadaan anak akak tetap akan begitu smpi bila2 w'pun umurnya panjang...tiada ubat dan tiada cara utk memulihkan fizikalnya kerana paru2nya akan sentiasa dipenuhi olrh lendir2 yg boleh membuatkan ia berair....melainkan keajaiban itu datangnya dari Allah s.w.t...mungkin ia kes pertama yg sembuh...
sebenarnya akak tidak kisah menjaga anak yg sakit..tetapi sekiranya ia telah menggunakan tracheastomy dan ventilator mmg akak rasa sedih sngt...utk memangku atau mendukungnya tiada lagi dpt akak lakukan...sekadar mengangkatnya saja. |
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Post time 6-3-2006 04:24 PM
Author
