To future mommies yg ada family history penyakit2 yg seperti berikut....

Delifrance · Post time 17-3-2008 11:28 AM

TO PREGNANT MOMS WITH HISTORY OF BLOOD DISORDER, BLOOD CANCER, IMMUNOCEFICIENCY DISEASE, THALASSEMIA ETC

Salam to all preknan mommies,

nak tanya, ade tak sesiapa di sini yg pregnant dan at the same time ade family history seperti di atas, atau pon dah ada anak yg mempunyai penyakit2 yg disebut kan.. ATAU PON ada saudara mara or kawan2 yg sepertinya... please PM me..

Terima kasih..... enjoy your pregnancy days and have a safe and smooth delivery!!

To the rest, harap boleh la baca thread UMBILICAL CORD BLOOD kat main page tu.. kite tak tahu bile anak kita akan dpt sakit2 mcm ni coz now ni penyakit2 ni sume are no longer genetic or hereditary.....Macam I myself, belah hasben ade kes SLE . my sister in law passed away of this disease after 2 minggu confirmed by specialists in GHKL and now cousin dia pon kene..very young, umur baru 20.. so i pray that my daughters will never get it... well, kita hanya mampu berdoa kan..

[ Last edited by Delifrance at 17-3-2008 11:36 AM ]

sweethonesty · Post time 17-3-2008 11:46 AM

sle ni blh bw maut ke?

halimatun · Post time 17-3-2008 11:52 AM

yup

my frens pon meninggal pas 2 minggu doc confirmed kan

Delifrance · Post time 17-3-2008 11:58 AM

boleh.. so far 2 org yg i kenal passed away of SLE - my sister in law, and my fren...meninggal at the age of 32. masa career tgh peak.. she was so smart, beautiful and successful..sad..

sweethonesty · Post time 17-3-2008 01:35 PM

takutnye dgr..xblh nak dettect awal ke sle nie?
apa simptomnye..

sweethonesty · Post time 17-3-2008 01:35 PM

ish sedih lah kalu dgr cite2 sedih nie

morango · Post time 17-3-2008 02:06 PM

SLE tu mcm mana kita nk tau kita ada ek?

Delifrance · Post time 17-3-2008 02:19 PM

SLE ni penyakit autoimmuno disease where the antibody works against u and attacks ur own cells and tissues..

ade yg detected early and dpt control , siap beranak pinak....
ade yg umur nye tak panjang mcm my SIL and fren.. Al fatihah..

nanti i get more info i'll write abt it here

tp i pon nak pegi t4st jugak dekat hukm..sebab i notice kadang2 tgk cermin pipi mcm merah2 pakai blusher walaupon tak pakai - salah satu tanda nye ade rashes kat pipi dipanggil butterfly rash

but tyhe whole point i bukak thread ni ialah utk mencari bakal2 ibu yg ade risiko penyakit ni.. dqn juga bakal2 ibu yg takde risiko apa2 utk baca thread umbilical cord http://forum3.cari.com.my/viewth ... ;page=6#pid21447178 becoz kita tak tahu satu hari nanti anak kita atau kite sendiri mungkin akan perlukan stemcell utk ubati penyakit2 yg mcm2 dan pelik2 sekarang ni...

sweethonesty · Post time 17-3-2008 02:26 PM

maknanye stemcell ni blh ubati SLE lah ek?

Delifrance · Post time 17-3-2008 02:31 PM

as for now it is in experimental stage (for SLE), utk thalassemia and leukemia mmg sudah ade tranplant yg berjaya (utk dua2 kes pakai stemcell adik beradik, and dr stemlife)

tp mana tahu esok lusa mmg terbukti
so kalau ada anak yg perlukan stemcell in the future, sekurang2 nya i have done some preparation
tp harapan i minta2 anak2 sihat dan dijauhkan dr segala penyakit
aminnn

Delifrance · Post time 17-3-2008 02:33 PM

utk penyakit wiscott aldrich (immunodeficiency disease, yg boleh merebak menjadi autoimmune disease- dah ade transplant yg berjaya - budak pangkor) tp dia tak simpan stemcell so dia cari matching donor - hanya ade di milan italy so terpaksa beli kat milan lah.. now budak tu dah sihat.. alhamdulillah

Delifrance · Post time 17-3-2008 02:39 PM

diambil dr: http://en.wikipedia.org/wiki/Wiskott-Aldrich_syndrome

"As Wiskott-Aldrich syndrome is primarily a disorder of the blood-forming tissues, a hematopoietic stem cell transplant, accomplished through a cord blood or bone marrow transplant offers the only hope of cure. This may be recommended for patients with HLA-identical donors, matched sibling donors, or even in cases of incomplete matches if the patient is age 5 or under".

sweethonesty · Post time 17-3-2008 03:22 PM

oh bagus info nie..baru tau..persediaan ek..

honeybee1802 · Post time 17-3-2008 06:17 PM

as for thal..sedara aku ada kene..mmg dr nasihatkan jgn beranak dah..sbb parents are carriers...
alala..tatutnyer dgr pasal SLE nih..aku penah ngk movie dulu...mmg SLE tuh attack organ dalaman dia..hati jadi keras...appereance lelama nampak org nih makin lama makin lemah,rambut mula kurang,muka mcm org tua...apa ek simptom2 dia?
stem cell nih dia leh imitate memana tissue tubuh kan?last year hasben ada patah kaki, kalo lambat dr kata nak amik apa ntah sumsum ke haper ntah, injek kat kaki kalo tulang tak cantum...aku pun terpk kalo ada stem cell musti takyah cucuk diri2 sendiri..

Delifrance · Post time 18-3-2008 12:05 AM

honeybee, dokter mana tu ek? which hospital?

so now kaki hasben dah ok?

kat thread umbilical cord blood tu kite ade tepek article from berita harian ' tulang rawan tumbuh semula' same dokter ke? (dr sow and dr paisal tak salah)

honeybee1802 · Post time 18-3-2008 08:13 AM

Originally posted by Delifrance at 18-3-2008 12:05 AM
honeybee, dokter mana tu ek? which hospital?

so now kaki hasben dah ok?

kat thread umbilical cord blood tu kite ade tepek article from berita harian ' tulang rawan tumbuh semula' same dokte ...

dr ruslan..dia ortho kat tawakal...tp tak buat pun sbb dia ckp kaki hasben mcm hampir ok.but bukan pakai umblical cord blood.pakai sum-sum (tak sure.tp dia ckp amik kat blakang)...ari tuh dlm amzing asia ada pasal org2 dr US,latin gi china sbb nak dptkan treatment stem cell nih...mcm2 kes...tp tak tertgk sampai abis...

honeybee1802 · Post time 18-3-2008 08:19 AM

AznieBunnie · Post time 18-3-2008 08:50 AM

tu sbb digalakkan buat blood test sebelum kawin. buat full test utk kaji apa 'potensi' penyakit yg bleh kena kat anak...

tp bebaik, now yg tak ada gen pembawa pun bleh jadi tau...
mcm kes anak me tu... now dah byk kes... bebaru kat GH KL... anak doktor ngan nurse kena biliary atrisia... baru mengelupur depa cari punca nak rawat...

Delifrance · Post time 19-3-2008 10:02 AM

honey.. sum2 tulang lah tu (bone marrow transplant). mujur tak payah buat ek..satu costly, satu lagi it's painful for donor satu lagi susah nak cari match!

stemcell ni sources dia sum2 tulang ni... periphheral blood (where injections will be given to induce the stemcells from bone marrow to flow into the blood stream, then kene extract darah tu keluar, process then masukkan ala2 blood transfusion) , UMBILICAL CORD BLOOD and embryo (which is unethical in most countries)

Delifrance · Post time 19-3-2008 10:08 AM

ur baby biliary atrisia? So dia dpt treatment apa sekarang? i don't know much about penyakit ni tp i hope u tabah menjaga dia..

nanti nak gi baca more on this penyakit

but u re right..ramai preknan moms yg i jumpa tak pernah check whether they are thalaaseamia carrier or not (perlu kite tahu if salah seorang mak atau ayah ade thalasseamia minor, 1 out of 4 children might get thalasseamia major) tu belom penyakit2 lain..

but like SLE, it wont show in any testings until u have it eventhough many school of thoughts kata it is genetic